I knew something was wrong with him. I knew it wasn't "just colic". Nobody wanted to listen to me.
I told our Family Doctor, "This baby vomits too much, and sometimes it's green." He said that babies spit up a lot, and that's normal. Which is the medical diagnostic equivalent of giving someone a pat on the head and a lollipop. I came back to our next check up and repeated, "This baby vomits too much, sometimes it's green, and sometimes he screams uncontrollably for hours on end and I can't help him feel better." Doctor says that its colic, and nothing more. Just a passing phase and I will have to suck it up until its over. He promises it will go away on its own. I suggest maybe there is a medical underlying issue, maybe gastric reflux. Family Doctor says that's a possibility, so I can take Jackson to a Pediatric GI specialist.
I took Jackson to the Pediatric GI Guy. I said, "This baby vomits too much, sometimes it's green, and sometimes he screams uncontrollably and there's nothing I can do to make him feel better." Pediatric GI Guy says that behavior is normal, a phase of colic, and it should go away on its own. I said I wanted to make sure there wasn't an actual underlying medical issue. He said, "So why did you come to see me?" I said, "To make sure there isn't anything seriously wrong." So he orders some tests, which feels like he's just doing this to placate me. You know, more pats on the head and lollipops.
This morning, we rose bright and early and I force-starved Jackson to empty his bowel in preparation for an Upper GI study. He had his last bottle at 5 am. His test wasn't until 10. I was dreading the time in between. You know he's going to cry, and you know you can't give him what he needs to feel better. It's heartbreaking. On the way to the Pediatric Hospital, I warmed his baba in the car and put it in an insulated coozy. The second he's done with his test, I think to myself, I can give him his baba and help him feel better. Because he will be starving!
His test went uneventfully, I thought. The Radiologist told me that if he saw anything, he would tell me right away. He said that Jackson didn't have Pyloric Stenosis, which was good. That was the bad diagnosis that I was fearing. That's the bad diagnosis that would require surgery. No Pyloric Stenosis was a good thing.
But then...
It's not Pyloric Stenosis, it's Intestinal Malrotation. This is something that I have read requires surgical intervention, and can be life threatening when left unchecked. So I am calling the Pediatric Surgeon for a consultation, and we'll take the next step after that.
I am not happy that there is something wrong with my baby, but at the same time I'm glad there is a diagnosis. I hesitated to complain too loudly, because I didn't want to be "That Mom" that bothers the doctor with each little hiccup. But I felt very strongly that something more was wrong. It wasn't just colic, it wasn't just a fussy baby, it wasn't just an upset stomach. I feel somewhat vindicated after being given so many pats on the head and lollipops. I *knew* it was something more.
I wish they had listened to me sooner. A mother knows her baby. They should have listened.
Monday, December 04, 2006
Mother's Intuition
felicia Monday, December 04, 2006
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When my eldest son was 6, he was formally diagnosed with ADHD. It took the expensive psychologist about an hour of testing to diagnose him. Classic case, he said. Will require medication, an aide in the class for behaviour, he'll always have trouble in school, he said.
We disagreed. Something was wrong, but it wasn't ADHD. I decided he needed his ears and eyes checked (no one had ever suggested that). Eyes were fine, ears were not. He effectively has half the normal hearing and it had been manifesting itself as behavioural and academic problems, just not classic hearing loss ones. We were so shocked that we had all missed it until then. We just knew something was wrong.
So instead of taking drugs his brain doesn't need and falling through the cracks, he's now a thriving, happy, social, smart and funny ten-year-old boy with hearing aids.
Mother's intuition is a beautiful thing. I wish everyone could listen to it like you (and I) did :)
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